Muscular Dystrophy UK, a charity that has funded our group, deliver online seminars on a range of topics and to mark condition awareness days, weeks and months. The seminars are targeted at patients, families, friends and anyone generally interested in the topics covered. On the 30th September, it is Limb Girdle Muscular Dystrophy (LGMD) Awareness Day, and our group was invited back to take part in the MDUK seminar. Last year we focused our talk on one of our projects which aimed to investigate a small cohort of undiagnosed LGMD families and which had just received funding from MDUK. This year it was great to be able to share some of our results as well.
The seminar included talks from clinical and healthcare specialists, along with a patient representative. It was really valuable hearing from the audience - many of whom are patients themselves, as to what issues are important to them.
The seminars can be watched again on the MDUK Youtube channel here: MDUK Muscles Matter 2021: Limb girdle muscular dystrophy (LGMD)
